TRUE Cares: Aeden’s Story
*Update 1/17: Donation links are no longer active at this time.
Luisa, a friend of TRUE, has a six-year-old son named Aeden, who is fighting the rare and underfunded disease of Duchenne Muscular Dystrophy (DMD). Surprisingly, DMD (a terminal illness) is the number one genetic killer of little boys in our world today. Children with this disease are often wheelchair bounded by the age of 12 and usually die in their late teens or early 20s.
Some Words from Aeden’s Mom:
“He is my bundle of joy and at this time he is still functioning, for the most part, like any other healthy 6 year old . . . he’s fun, loving, smart and FULL of life. He also has a cute and funny personality and is quite the comedian – his brother Ernesto can certainly attest to all that – plus he LOVES to be the center of attention. As any parent would be, I am devastated that he is afflicted with this terminal disease. It is slowly destroying his muscle tissue and he’s already show signs of weakness. Though there is not a cure, Matt’s Promise is one of the few Foundations that help support research and families facing this disease.
Since it is a rare disease and many people are not aware of it, the funding for research from the pharmaceutical companies, city, government, other foundations, and individual donors are not directing their funding into investing in this cause.
This is why I am reaching out to you, so I can make you aware of this rare disease and to ask you for your help. You can help this cause by raising awareness of this disease to your friends, family and work colleagues and if you are able, to make a donation.”
How You Can Make a Difference:
Option 1: Direct Donation to Matt’s Promise in Honor of Aeden.
1. Click on this URL: http://www.mattspromise.org/donation/
2. It will bring you directly to the Matt’s Promise on-line Donation page.
3. Scroll down to the middle of the page until you see the 1st Box that will be titled: Important: Is this in honor of someone?
4. Within this the 1st box, it is important to note that you are making a donation “In Honor of Aeden Gallagher-Pignoloni – Luisa Gallagher’s Son – and understand that this donation will benefit Aeden directly and go towards his cause.
Option 2: White + Warren’s Promotional Sale in “Honor of Aden.”
During the month of December, White + Warren, through Matt’s Promise Foundation, is running a SPECIAL SALE of 15% Discount off your total purchase “in Honor of Aeden”. In return, White + Warren is donating another 15% of the total proceeds raised during their promotion.
Use the PROMO CODE: MATTSPROMISE.
Your holiday purchase at White + Warren will make a real difference in Aeden’s quality of life along with the many other boys suffering from this disease. We have a long journey ahead of us and I know any support you can give, will help us on our long journey to finding a cure for this deadly disease.
Please help make a difference in Aeden’s life by donating, shopping at White + Warren, and/or by sharing his story with friends, family, and co-works.